Clondalkin Cllr Francis Timmons recently stated “I was very honoured to stand with the families calling on the Minister and the HSE to allow access to Spinraza for those living with SMA, Sam from Rathcoole and Glen from Clondalkin deserve better, while the government, the HSE and the Pharmaceutical companies drag their heels, we have people’s health deteriorating. This is a life changing drug I have had several motions on this agreed by South Dublin County Council. This drug has been used since 2016, about 1 in 11,000 are born with SMA, these families deserve the best treatment available and more importantly the people living with SMA deserve the best available medication.”
Pictured Cllr Timmons with Sam and the Bailey family.