Spinraza For Two Local Boys

Spinraza For Two Local Boys Clondalkin Rathcoole
Clondalkin Cllr Francis Timmons recently stated “I was very honoured to stand with the families calling on the Minister and the HSE to allow access to Spinraza for those living with SMA, Sam from Rathcoole and Glen from Clondalkin deserve better, while the government, the HSE and the Pharmaceutical companies drag their heels, we have people’s health deteriorating. This is a life changing drug I have had several motions on this agreed by South Dublin County Council. This drug has been used since 2016, about 1 in 11,000 are born with SMA, these families deserve the best treatment available and more importantly the people living with SMA deserve the best available medication.”
Pictured Cllr Timmons with Sam and the Bailey family.
Sarah Brooks

Sarah Brooks

Sarah has worked in marketing and content creation for many years. In her role at Newsgroup, she is the online editor of www.newsgroup.ie with a particular interest in local news and events. Sarah also works closely with our editorial team on our printed editions in Tallaght, Lucan, Clondalkin and Rathcoole/Saggart. If you have a story and would like to make contact please email Sarah at info@newsgroup.ie.


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